More Than You Can Handle: A Rare Disease, A Family in Crisis, and the Cutting-Edge Medicine That Cured the Incurable By Miguel Sancho

Mobi More Than You Can Handle: A Rare Disease, A Family in Crisis, and the Cutting-Edge Medicine That Cured the Incurable with FREE MOBI EDITION Download Now!

Name: Mobi More Than You Can Handle: A Rare Disease, A Family in Crisis, and the Cutting-Edge Medicine That Cured the Incurable with FREE MOBI EDITION
Rating: 9.2 (8718 reviews)
Author: Miguel Sancho

Books,Medical Books,Medicine More Than You Can Handle: A Rare Disease, A Family in Crisis, and the Cutting-Edge Medicine That Cured the Incurable Miguel Sancho

4,9

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The personally harrowing and medically enthralling story of a family's struggle to save a child from a deadly immune deficiency.A journey through the deepest valleys and highest peaks of parenting. When a two-month-old baby falls ill, his apparently ordinary symptoms turn out to signal a rare and lethal immune deficiency. For parents Miguel Sancho and Felicia Morton, the discovery that their son, Sebastian, has chronic granulomatous disease (CGD) upends their lives and leaves the family with few options, all of them terrifying. With Sebastian at constant risk of deadly infection, they spend the next six years in some degree of self-quarantine, with all its attendant anxieties and stressors, as they struggle to keep their son alive, their marriage intact, and themselves sane.The quest for a cure leads them into the alternate universe of the rare-disease community, and to the cutting edge of modern medicine, as their personal crises send them fumbling through various modalities of self-help, including faith, therapy, and meditation. With brutal honesty, Sancho describes how his struggles derail his career, put his marriage on life support, get his family evicted from a Ronald McDonald House, and ruin a Make-A-Wish trip.Sancho's riveting tale of the diagnosis and treatment of his son's illness takes us deep inside the workings of the immune system, and into the radically innovative treatment used to repair it. Ultimately Sebastian is saved with a stem cell transplant using discarded umbilical cord blood, a groundbreaking technique pioneered and practiced by the medical wizards at Duke University Hospital.Deeply researched and darkly humorous, this is a wrenching tale with a triumphant ending.

At this time of writing, The Mobi More Than You Can Handle: A Rare Disease, A Family in Crisis, and the Cutting-Edge Medicine That Cured the Incurable has garnered 8 customer reviews with rating of 5 out of 5 stars. Not a bad score at all as if you round it off, it’s actually a perfect TEN already. From the looks of that rating, we can say the Mobi is Good TO READ!

Mobi More Than You Can Handle: A Rare Disease, A Family in Crisis, and the Cutting-Edge Medicine That Cured the Incurable with FREE MOBI EDITION!

Miguel Sancho has written a transcendent account of his son's diagnosis, treatment, and recovery from a potentially lethal genetic disease called CGD (chronic granulomatous disease). Embarking a multi-year diagnostic and therapeutic odyssey in search of a cure for young Sebastian, Miguel stares down the complex science and recounts the harrowing emotional journey that could have destroyed all of them. But this family did survive, through nothing short of brilliant medical minds, God's grace and the deep reservoirs of love and compassion they have for each other. While pursuing the cutting edge treatment of a bone marrow transplant, Miguel and Felicia forgive each other their trespasses and courageously confront the cracks in the edifice of their family and their own characters. Miguel and his family miraculously emerge with renewed humility, gratitude, and unbelievably, joy. I flew through this book and found myself deeply connected to the struggles of a father and mother just trying to do a good job for their children. Churchill said "when you're going through hell, keep going." It will warm your heart to know that in the end, they emerged and God did not give Miguel and Felicia more than they could handle.

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